My Life After Cancer: A Personal Statement From a Leukemia Survivor
My life since I completed my chemotherapy treatment and earned the title “leukemia survivor” has been quite the Metanoia.
Don’t freak out! I just like uncommon words. And this harmless little Greek word simply means “A journey of changing one’s mind, heart, self, or way of life.”
It sounds peaceful, doesn’t it? This word Metanoia seems to naturally evoke thoughts of rivers flowing gently through peaceful valleys… Maybe a few songbirds and butterflies flitting through the air.
My life after cancer has definitely been a journey, but you can forget the illusion of peaceful valleys and songbirds.
No, thoughts of my Metanoia conjure images of the desecrated and burning depths of hell where the very environment serves to evoke pain and suffering on every level. The closest thing to songbirds in the air was the fire that occasionally rained down from above.
To be fair, I believe I DID encounter a river in hell. The “river of lost souls” or something like that. If you are interested in hearing more about my “cancer is hell” analogy, you can check that out here.
In all honesty, there was nothing peaceful about my journey to recovery after two-and-a-half years of intensive chemotherapy. And enduring those hellish conditions completely changed me, my perspectives, and my life in just about every sense.
For those of you who don’t already know me, my name is Aspen, and there are a few things I want to share with you.
When I got cancer, it was like the floodgates of hell broke loose. Everything I knew about myself and the world was swept away and obliterated. The flood of dark waters threatened to sweep my very life away many times, but somehow they didn’t.
While those flood gates eventually closed, and the raging torrent eventually subsided, I have been left to sink or swim in the remaining water.
(Along the lines of this analogy, let’s just say I have had to become a phenomenal swimmer).
It took me a long time to want to share my experiences. I couldn’t do it through the chemotherapy years that were full of immense physical suffering. Then, the trauma of those years smothered any spark of desire I had to tell my story.
I spent a long time running like hell from my cancer and everything it had done to me.
I had to run from it. I wanted to forget that it had ever happened to me and go on to be healthy and “normal”.
I needed my suffering to be in the past because my pain was threatening to drown me.
I initially had the delusion that once my cancer was gone and my treatment ended, my life would be okay. I thought I would be okay.
I understood how wrong I was a few months into my chemo treatment. My life had been irrevocably changed from the moment I was diagnosed in the hospital. It just took me a while to accept that.
If you have not already done so, take the time to read My Story about what occurred during my years of chemotherapy. If you have already done so, or if you personally know me, the next line will make perfect sense to you:
My cancer and chemotherapy broke me. Suffering so greatly for so long does not leave your body or spirit intact.
Scars caused by immense mental and physical suffering aren’t always just a distant reminder of an old battle wound. Some can actually limit you as you move forward. These are the kinds of scars that you have to learn to live with.
Your experiences shape you. They make you who you are.
I realized I couldn’t run away. I was the product of my experiences. Cancer and chemo had forced me to discover my greatest strengths, instilled my greatest fears, sculpted my perceptions of this world, left my physical body scarred and damaged, and had given me an entirely new health battle to deal with the rest of life.
Cancer and all the suffering it brought— every physical and emotional “side effect” it left me to deal with—was now an inescapable part of me.
When I had this monumental epiphany… I was furious. I was in disbelief at how unfair it was. I agonized through cancer and chemo, and I couldn’t even escape it? I wanted nothing more to do with cancer. I wanted my physical and emotional pain to end.
I wanted to forget.
No one wants to coexist with their greatest tormentor— the thing that brought them more pain and suffering than anything. I didn’t want that. Like hell I was going to accept that.
Feeling like the world had ripped me off, I opted to remain in an intentional state denial for a while longer.
Then, I realized (with a SECOND epiphany) that I was giving in.
I was bending the knee (yes, this is a G.O.T. reference) to the world that told me I should die; the world that had convinced me life was just suffering and pain; the world that gave me every possible reason to hate life, despise my body, and give up.
And I was playing right into its hands. At that time, I hated myself, my life, and did not want a future.
This was unacceptable. Other people and external forces had been dictating what my life looked like for too long. And now the world was trying to shove me into a box right next to my cancer to promote my suffering. There was no way I was letting that happen.
So, I decided to do the last thing I ever thought I would do.
I chose to embrace everything I had been through.
I began to wade through the never-ending stream of horrible memories and trauma that I had encountered. I challenged my beliefs, perceptions, and fears, recognize where I needed to grow, and learn how to keep my past from ruling my present.
I accepted that cancer had messed me up and that I had to fix myself and learn to be better than I was.
I began to see how cancer has made me strong, empathetic, introspective, wise, compassionate, and resilient.
I chose to embrace myself despite feeling betrayed by my own body and in spite of long-lasting physical and emotional challenges that affect me to this day. I came to believe that I am more than my physical body and whatever it goes through.
I refused to let cancer and it’s long–term effects define who I was.
I embraced the hell of the past, the frustration and limits of the present, and the potential hardships the future may bring, and made the decision to do everything in my power to grow from my experiences.
I accepted that I may very well be forced to swim in the dark water that remained after my chemotherapy.
So I became a damn good swimmer.
The world tried to screw me over, and I raise my middle finger in response.
Cancer is a part of me, and I accept that. It is just one of the many parts that make up Aspen.
And I love who I am: In mind, heart, and spirit, I think I am pretty cool.
(Even if I don’t always get along with my physical body).
So who is Aspen Heidekrueger? What kind of crazy person did cancer turn her into?
Let me share some things about me and you can decide for yourself:
I am someone who could spend hours in a library or bookstore and then equally as much time in a coffee shop, reading the books I found.
Nothing makes me feel more alive than being able to run outside for miles on end (whenever my body permits me to do this).
I sit on the edge of cliffs whenever I come across them on hikes… And I always have someone take a picture as proof. ———————————>
I jump into every single mountain lake I come across, even the glacial ones.
Going outside to run around in the rain (like it is a socially acceptable thing) just to feel the drops on my skin and get completely soaked is one of my favorite things to do in this life.
I am slightly obsessed with beautiful and unique words that seem to understand me more than most human beings do. Read about my all-time favorite word here.
Something (other than running) that makes me feel truly alive and reminds me that the world is beautiful is going outside at night to look at the stars.
I love studying philosophy and appreciate the peace philosophical perspectives can bring me. (That’s right, philosophy is NOT just for old, dead Greek dudes). Click here to read about one concept that helped me find control after my battle with cancer.
My idea of a great time is getting up at ungodly hours of the morning to go climb a 14er (mountains above 14,000ft).
If the apocalypse happens, I will be happily backpacking through the woods… deep in the mountains… as far away from civilization as possible and using a bow to hunt like Katniss Everdeen from the Hunger Games.
Any time there is a song that I know playing, I will sing along to it. (Yes, even in public) And I laugh and joke around all the time.
As you can tell from the pictures below, my camera is basically a natural extension of my hand. My personal philosophy as a photographer is that you can’t be afraid to be in socially questionable poses to get a good photo (such as laying flat on the ground).
My photos are all over this blog. Just look for the photos with my name on them!
Did I mention that I love writing? (This blog might have been a hint).
My scars are visual reminders of how much I have endured (there are a lot of them, believe me), and I love every single one.
I feel like I am 67 years old mentally (If time flies when you are having fun, the last 20 years of my life have gone at the pace of an old snail… that is traveling uphill… and taking a break every 5 seconds).
I always somehow find the strength to continue even when I feel like I have nothing left. You have heard of rock bottom, right? Well, let me tell you now: Rock bottom has a basement.
And finally:
I STILL STRUGGLE. I actively face ongoing health issues that make for a lot of bad days, I deal with anxiety and panic attacks, and I have to handle the stress of normal life on top of it. I feel the weight of my pain-filled past, I get discouraged when I face challenges in the present, and I worry about my health in the future.
I still get to points where I don’t know how to go forward. I often think life is unfair and hate my circumstances.
But I never give up. I never stop trying to be happy.
When bad things happen, I scream, I cry, I get angry, I feel the unfairness of it all. (believe me, it’s not a pretty sight).
But then I find the strength to keep going. I choose to take control of where I can and make the best of it.
I keep trying to improve and be the best version of me possible.
I take joy where I can find it, and work ridiculously hard to live a happy life.
Where there is a will, there is a way.
I have no idea how much time I may or may not have, given the numerous post-chemo concerns for my health in the future.
And I will fight until my very last breath and do everything in my power to live this life to the fullest.
And for me, that means experiencing all that life has to offer—the good and the bad. This means taking everything I am given and making the very most of it.
This is my life. I only get one. And I refuse to waste a moment of it.
However short or long, I will make the most of the time I have.
So now, nearly eight years after my cancer diagnosis, it is time to share the story of my journey, my Metanoia, with the world. It is a tale of surviving and overcoming, but more than anything it will be a story about living.
All we have to decide is what to do with the time that is given us – J.R.R Tolkien